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agosto 30, 2017

 

Bienvenidos a nuestro blog

En este blog podemos compartir inquietudes, consejos, animarnos y sobre todo saber que no estamos solos.

Comencemos conociendo que es la fibromialgia y sus síntomas. Compartamos cual es el síntoma que mas incapacidad te ha provocado y que haz hecho para mejorar, los invito a tratar de sacar el mejor provecho de nuestra comunicación.

¿Qué es la fibromialgia?

La fibromialgia es una enfermedad crónica que se caracteriza por dolor musculo esquelético en ocasiones incapacitante y que suele presentarse sin causa aparente. Además se presentan problemas de la memoria y cambios de estados de ánimo, así como trastornos del sueño. La Organización Mundial de la Salud la reconoció como una enfermedad en 1992.

La causa de la fibromialgia no se conoce con certeza , hay evidencia de que la fibromialgia es genética Por lo que algunas personas pueden ser más susceptibles a la enfermedad debido a factores genéticos predisponentes. En la fibromialgia hay un aumento en la sensibilidad y la activación de los receptores del dolor . Debido a que la respuesta al dolor se amplifica en los pacientes con fibromialgia , por lo que ellos perciben como dolorosos estímulos que normalmente no se perciben así como puede ser un abrazo, un apretón de manos.

Los principales síntomas adema del dolor generalizado y el cansancio son:

  • -Fatiga.- que no mejora con el descanso
  • Dolor de cabeza-aparentemente por ninguna causa
  • Rigidez de las articulaciones y músculos.- más intenso en las mañanas.
  • Insomnio.-sueño no reparador, se levantan cansados.
  • Colon irritable.- puede ser estreñimiento o diarrea y trastornos digestivos.
  • Menstruación dolorosa.- menstruaciones insólitamente dolorosas.
  • Mala circulación en las extremidades.- manos y pies fríos.
  • Dificultades cognitivas.- problemas de memoria inmediata y de concentración.
  • Sensación de hinchazón y hormigueo.- sentir los pies y manos hinchados, estos síntomas suelen aparecer al despertar.
  • Ansiedad y depresión.- esta inquietud emocional suele ser consecuencia directa del sufrimiento causado por el dolor.
  • Sequedad de ojos y boca.- no hay suficiente lubricación en los ojos ni saliva en la boca.
  • Falta de fuerza muscular.- se tienen los músculos débiles
  • Cólicos abdominales.
  • Adormecimiento de piernas y brazos.

Hasta hace poco quienes mas la padecían eran mujeres de mediana edad, actualmente se tienen registros de hombres y de adolescentes  que están siendo diagnosticados.

Alrededor del 4% la población mundial padecen fibromialgia

Los síntomas de la enfermedad y el no tener un diagnostico ocasiona que la mayoría de los pacientes padezcan depresión o ansiedad. Además genera en los pacientes altos niveles de estrés, que a su vez produce más dolor, por lo que en estos casos el tratamiento psicológico con terapia cognitiva conductual controla el estrés, reduce el dolor y mejora de la calidad de vida.

No hay tratamiento farmacológico para la fibromialgia que sea plenamente eficaz, el tratamiento debe ser integral: reumatólogo, nutriólogo, ejercicio, y terapias. Esto ayuda a que el paciente poco a poco se pueda integral de nuevo a sus actividades laborales, familiares y sociales.

El diagnostico es clínico y lo hace un reumatólogo no hay un análisis que confirme la fibromialgia.

Compartamos¡¡¡¡¡

67 Comments

  1. Sandra Cortina dice:

    Gracias por toda la infirmación, es muy ilustrativa y me ayudó a entender más la enfermedad .

  2. jc dice:

    Gracias por dedicar tanto tiempo con el único fin de buscar una mejor vida a las personas que enfrentan este reto. la nueva página es muy completa útil y amable en su navegación…sigan adelante con tan extraordinaria labor . gracias !!!

  3. Ana Valdovinos dice:

    Muchas gracias por compartir, así entendemos más a esta enfermedad.. Quisiera algún contacto para compartir más los síntomas y saber si realmente se trata de fibromialgia…

    • Mónica Herrera dice:

      Hola Ana, los teléfonos de cadena de ayuda son 55732394 y 63079908
      Ahí contamos con reumatólogos quienes pueden hacerte un diagnostico.
      saludos

  4. Laura calderon moreno dice:

    Soy una mujer de escasos recursos y padesco fibromialgia estoy desesperada xq el dolor cada vez es mas insoxtable no se que hacer uds podrian de alguna manera ayudarme o decieme que puedo hacer se los boy a agradecer mucho

  5. Susan Rodriguez dice:

    Hola ,soy de monterrey y tengo 5 meses de ser diagnosticada con fibromialgia. Estoy aprendiendo y saliendo adelante con toda la actitud . Todo es súper costoso y gracias a Dios lo puedo costear y me pongo a pensar en las mujeres de escasos recursos que la padecen y tienen que soportar todo sin medicamento ni alternativos por los costos. Quiero ayudar o hacer algo parecido o igual aquí en monterrey pero no se cómo empezar para ayudar a las mujeres de monterrey de pocos o escasos recursos.

  6. Mary dice:

    Hola tengo varios años padeciendo de fibromalgia en un momento de mi vida pensé que había sido problemana superado, pero a raíz de una situación difícil, los síntomas se volvieron a hacer presente y parece que hubiesen aparecido repotenciados, quisiera saber si en la Ciudad de Cancun tienen alguna sede, o si me pueden ayudar refiriéndome a otro lugar. Quiero destacar que actualmente ya no tengo ni los recursos ni la compañía ni las fuerzas con que contaba antes.
    Por favor ayúdenme.
    Muchas gracias

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